We put together a great team of people involving health professionals, researchers and activists in order to provide a comprehensive view of the challenges brought by NEC.
At the end of the two-hour main event, we invite participants to meet for a virtual networking session in our two zoom rooms: “Families and Survivors” and “Health Professionals”.
Isabella is a mum of three, a TV presenter, business woman, board member and ambassador of Instituto PGG. She plays a crucial role in raising awareness for NEC. Isabella is always ready to shower affected children and their families in hospital with affection. Thanks to her engagement, more people are able to reach out to Instituto PGG.
17 November 2020
11pm to 1pm PST / 3pm to 5pm EST / 8pm to 10pm GMT
Isabella Fiorentino welcomes our amazing community to presentations and talks by Jennifer Canvasser, Walusa Assad Ferri, Jae Kim, Steven McElroy, Maria Fernanda Camargo, Jocemara Gurmini e Linseigh Green. Hosted by Simone Rosito. SIMULTANEOUS TRANSLATION.
1pm to 2pm PST / 5pm to 6pm EST / 1opm to 11pm GMT:
Zoom room for families and survivors: Denise Suguitani and Hortensia Rosito host families of babies affected by NEC and short bowel syndrome children, grieving families, and adult survivors for a virtual coffee break to strengthen our community ties. Simultaneous translations available.
Zoom room for health professionals: Dr Walusa Assad Ferri will host a virtual coffee break for health professionals to network, exchange information and contact details.
The Journey of Building an International Movement for a World without NEC
Instituto PGG’s International Adviser, Jennifer Canvasser @jenncanvasser is the mother of a child who died from necrotizing enterocolitis and is the founder and director of the Necrotizing Enterocolitis (NEC) Society, a member of the Chan Zuckerberg Initiative’s Rare As One Network. She completed her undergraduate studies at UCLA, earned her Master’s in Social Work from the University of Southern California, and is currently a part-time doctoral student studying sociology at UC Davis. Jennifer serves as an expert panelist for the California Perinatal Quality Care Collaborative, an advisor for the Patient-Centered Outcomes Research Institute (PCORI) Patient Engagement Advisory Panel, and co-chairs the International Neonatal Consortium workgroup on NEC. She has served as the project lead on three PCORI Engagement Awards.
Linseigh Green survived necrotizing enterocolitis in 1997 and discovered she had long term complications when she was 16. She struggles to access credibility and care for these issues and hopes this will change someday. She now serves as a social media manager and patient-family advocate for the NEC Society. Of course, Linseigh is not just a patient. An alumna of NYU’s Gallatin School of Individualized Study (BA Social Impact Storytelling ‘19) and a current Creative Writing MSt student at the University of Cambridge, she is a devotee of stories that promote empathy within and between communities. In 2021, she will explore the intersection of technology and narrative as she pursues her second Master’s at Royal Holloway. Linseigh is currently working on a book about her relationship with health as a young person.
NEC in Brazil: challenges, incidence and needs – the medical perspective
Hostess and Mediator of the virtual coffee break zoom room for health professionals
Neonatologist and clinical researcher. Professor of Ribeirão Preto Medical School – University of São Paulo (USP/RP), the Department of Child Care and Pediatrics, Brazil. Trainning in pediatric, neonatology, and pediatric intensive care in the Ribeirão Preto Medical School-(USP/RP). Doctorate (2011) University of São Paulo, Brazil. Post-doctorate (2015) Autonomous University of Barcelona, foetal medicine, Spain. Coordinator of Neonatology/USPRP-Brazil .
Division Director of Neonatology in the Perinatal Institute at Cincinnati Children’s Hospital Medical Center and a Professor of Pediatrics at the University of Cincinnati College of Medicine. His special areas of clinical and research interests include neonatal nutrition, neonatal bowel injury, bedside ultrasound and resuscitation. He is a co-founder of the San Diego Mothers’ Milk Bank and the Director of an innovative, nationally recognized multidisciplinary program to advance premature infant nutrition called SPIN (Supporting Premature Infant Nutrition). He is the co-author of the book, Best Medicine: Human Milk in the NICU. He is an active Council member of the AAP Committee on Nutrition and Scientific Advisor to NEC Society.
She has worked at Samaritano Hospital in São Paulo since 1986, Coordinator of the Transplant Center at Samaritano Hospital since 2010. Responsible for the Intestinal Rehabilitation program for patients with ultra-short bowel since 2016. Head of the SoE of Nephrology and Transplantation at UHG Brasil since 2018. She graduated in Medicine, specialized in Paediatrics and Nephropediatrics at Instituto da Criança, Hospital das Clínicas (Faculty of Medicine, University of São Paulo) between 1992 and 1996. She specialized in the treatment of Chronic Kidney Failure, Haemodialysis, Peritoneal Dialysis and Transplantation. He is a member of the Brazilian Society of Paediatrics, the Brazilian Society of Nephrology and the Brazilian Organ Transplant Association.
Dr. McElroy received his medical degree at Hahnemann University in Philadelphia, PA. He then trained in Pediatrics at St. Christopher’s Hospital for Children in Philadelphia, PA, and in Neonatal-Perinatal medicine at Vanderbilt University in Nashville, TN. He was originally a faculty member at Vanderbilt University before moving to the University of Iowa where he is now an Associate Professor in the Stead Family Department of Pediatrics and in the Department of Microbiology and Immunology. Dr. McElroy has had a long-standing interest in understanding the injury and repair mechanisms of the developing small intestine and specifically how this relates to neonatal necrotizing enterocolitis. His laboratory has made seminal discoveries linking Paneth cells and goblet cells to protection of the immature intestinal tract, has developed a novel model of necrotizing enterocolitis that is shedding light on alternative pathways to develop the disease, and has begun to investigate the link between maternal chorioamnionitis and subsequent intestinal disease of offspring. Dr. McElroy has authored over 35 peer-reviewed manuscripts and his laboratory has received funding from the NIH, the Children’s Miracle Network, and from industry partners. He has lectured nationally and internationally and sits on the Scientific Advisory Board for the NEC Society. He has served in leadership positions in the Midwest Society for Pediatric Research, the Perinatal Research Society, and as Interim Division Director of Neonatology at the University of Iowa from 2016-2018.
Paediatrician with Practice in Paediatric Gastroenterology and Nutrology. Specialist in Parenteral and Enteral Nutritional Therapy. Master in Health Sciences – PUCPR. Professor of Paediatrics, School of Medicine, PUCPR. Clinical Coordinator of the Nutritional Support Service of Hospital Pequeno Príncipe, Curitiba-PR, Brazil.
