Instituto PGG is a non-profit and non-governmental organisation, formally established on the 9th March 2016 by a multitalented, multidisciplinary team. Instituto PGG puts empathy together with knowledge so that information can be made available to parents and family members of babies affected by necrotising enterocolitis as well as encouraging and fomenting the creation of a support network.

We are based in Sao Paulo, Brazil, and have a national presence as well as international partnerships. We believe that the war against NEC is a global one and therefore requires the largest possible army, which is why we invest on international partnerships so that the communication flow on the best practices for NEC prevention, diagnosis and treatment can be maximised.

Our site aims to serve family members, psychologists and health professionals, with no geographic distinction. We encourage the information flow on NEC which is why we facilitate contact between:
– Family members and other family members
– Experienced psychologists with psychologists who want to understand better how to deal with those touched by NEC
– Family members and free, specialised psychologists who offer assistance on the challenges brought by having a baby affected by NEC
– Experienced health professionals with other health professionals interested in learning more about the disease.

The Brazilian Health Ministry does not allow for patient-doctor consultation via Telemedicine, so no individual medical advice is offered.

Mission: to offer psychological assistance to families of babies affected by NEC, to collect statistics on the disease in Brazil, to foment research and to raise awareness.

Vision: to enable intestinal and multivisceral transplants to be successfully performed in Brazil as well as supporting the implementation of best practices in intestinal rehabilitation.

Parents:
Human milk is the only proved effective way of preventing NEC.

Health Professionals:
Attention to any feeding intolerance presented by new-borns. IT could be an early sign of NEC, especially if the baby is premature.

Annual Report 2016

How can you help?

The best way to help us now is to spread the word about our existence and also alert parents-to-be, especially those potentially at risk of having a premature baby, about the existence of NEC.
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About the Team

The real warriors are the babies battling this disease, followed by their family members. We are just tools in this fight, tools who aspire to becoming weapons to help them win this war. We are passionate and committed to this cause.

Simone Rosito

Diretora-Presidente e Fundadora

Tia apaixonada do Tom e do Dani, graduada em Administração e Relações Internacionais pela Universidade de Aberdeen, Mestra em Politica do Oriente Médio pela Universidade de Durham

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Rodolfo (Rudi) Henrique Fischer

Conselheiro

Engenheiro civil formado pela Escola Politécnica da USP em 1984 e Mestre em Negócios pela Sloan School – Massachusetts Institute of Tecnology (MIT) em 1990, é idealizador do Projeto Anna Laura Parques Para Todos,

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Bia Rosito

Conselheira

Mãe do Tom e do Daniel, formada em Psicologia pela Universidade Mackenzie, pós-graduada em Administração de Empresas pela FGV.

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CELSO REBELLO

Conselheiro Medico Senior

Doutor em Pediatria pela FMUSP; Membro do Departamento Científico de Neonatologia da Sociedade de Pediatria de São Paulo

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Renata Mascaretti

Conselheira Médica Senior

Possui Graduação em Medicina pela Universidade Federal de São Paulo (1992) e residência em pediatria e neonatologia pela Universidade de São Paulo. Possui Título de especialista em Pediatria (1995) e Título de especialista em Neonatologia (1997) pela Sociedade Brasileira de Pediatria, concluiu o Doutorado em Ciências Médicas pela Universidade de São Paulo em 2004.

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Hortensia Rosito

Psicóloga Chefe

Psicóloga clínica com pós graduação em Psicoterapia psicanalítica pelo Núcleo de Estudos em Psicoterapia e Psiquiatria.

Buy the book

12512358_1773616686190918_7156697082649029488_nInstituto PGG does not yet accept financial donations from individuals, as a matter of transparency. However, you are able to help us by buying the soon-to-be released in English book “Oh My Buda! Exotic Travel Diaries”. All the proceeds go to PGG.