Instituto PGG is currently running a pilot project on data collection on NEC in Brazil. The aim is not to assess participating institutions, so all the information collected is confidential and will be released annually aggregated.

The questionnaire, which can be answered on the computer, tablet or phone, takes less than 15 minutes to be completed per case reported and will supply some much needed numbers and visibility on the disease. Most of the questions require closed answers, except when a numerical answer is required.

Instituto PGG will consider on a case-by-case basis applying a hardcopy version of the questionnaire, including pre-paid return postage, for institutions in remote areas.

The questionnaire is currently available only in English.