The Journey of Building an International Movement for a World without NEC
Instituto PGG’s International Adviser, Jennifer Canvasser @jenncanvasser is the mother of a child who died from necrotizing enterocolitis and is the founder and director of the Necrotizing Enterocolitis (NEC) Society, a member of the Chan Zuckerberg Initiative’s Rare As One Network. She completed her undergraduate studies at UCLA, earned her Master’s in Social Work from the University of Southern California, and is currently a part-time doctoral student studying sociology at UC Davis. Jennifer serves as an expert panelist for the California Perinatal Quality Care Collaborative, an advisor for the Patient-Centered Outcomes Research Institute (PCORI) Patient Engagement Advisory Panel, and co-chairs the International Neonatal Consortium workgroup on NEC. She has served as the project lead on three PCORI Engagement Awards.